About Me

May is NF Awareness Month

Hello teacher friends!  Happy May!  May is a wonderful month…we get flowers, it’s almost the end of the school year, the unofficial summer beginning, Memorial Day picnics…makes me smile just thinking about all of these wonderful things!

May is Neurofibromatosis Awareness Month.   What is Neurofibromatosis?  Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue. These tumors can develop anywhere in your nervous system, including your brain, spinal cord and nerves.

I suffer from this medical condition.  My body is riddled with hundreds of tumors.  The tumors are everywhere.  There is no medication, no lifestyle change, diet, nor cure for this horrific condition.  The tumors are growing and continue to grow.  I am in constant pain and a day does not go by when I do not think, “Why me?”

There are only two choices for me:  Be happy or be upset.  Period.  I chose to be happy everyday.  Sure, my body hurts, sure I get tired easier, sure, I have days that I feel ugly.  BUT, I have more happy days because I HAVE CHOSEN to be happy.  I am working as a teacher and I get to work with children that look past all of my tumors and never fail to remind me how beautiful I am.  I work with a great bunch of people that value my opinions and look to me for support.  I have a wonderful and attentive husband that is willing to walk 10,000 miles for me.  Neurofibromatosis does not define me.  I am appreciated for my efforts and dedication to a wonderful and fulfilling career that I am blessed to be able to go to every single day.  I choose to inspire and be inspired by those around me that share the same thoughts and dreams.  I choose to always be happy!

Do you know someone with neurofibromatosis?

Selfie with the teacher!

 

 

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